Nancy Keene, a well-known writer and advocate for children with cancer, is the parent of a 22-year survivor of high-risk acute lymphoblastic leukemia. She is one of the founders of the nonprofit Childhood Cancer Guides, and she has written many books for families of children with cancer, including Childhood Cancer Survivors; Your Child in the Hospital; and Chemo, Craziness, and Comfort. She co-authored Childhood Cancer: A Parent's Guide to Solid Tumor Cancers and edited Educating the Child with Cancer. She served as chair of the Patient Advocacy Committees of both the Children's Cancer Group (CCG) and Children's Oncology Group (COG)-- consortiums of researchers from more than 300 institutions that treat children with cancer. Ms. Keene has been interviewed on National Public Radio about childhood cancer survivorship, frequently speaks to professional and parent groups, and has participated in online pediatric cancer support groups (www.acor.org) since they began in 1996.
"This is the most comprehensive resource available for parents and
caregivers of children diagnosed with leukemia. These families must
become immediate experts and Childhood Leukemia: A Guide for
Families, Friends & Caregivers presents up-to-date information in
understandable language. Parents find the vignettes helpful,
comforting and encouraging. We believe so strongly in this book
that a copy is given to each family." Mary McSherry, ACSW, LSW
Social Worker, Division of Oncology, The Children's Hospital of
Philadelphia "This book is an extraordinary resource. In its pages
the reader will find clear, concise, and understandable information
about childhood leukemia. And even more powerfully, the reader will
"hear" the voices of parents who share their experiences in their
own words: what worked, what didn't, what helped, what hurt.
Families, friends, and caregivers who use this book will have
information and support at their fingertips, and a powerful tool
with which to help young people with leukemia get what they need to
claim their lives in spite of this disease and the toll it takes."
Kathy Ruccione, PhD, MPH, RN Co-Director of the HOPE
(Hematology-Oncology Psychosocial and Education) Program Children's
Hospital of Los Angeles "I highly recommend Childhood Leukemia to
all families of children with leukemia. It is an immediate help for
the newly diagnosed parent and a comprehensive reference for the
subsequent years of treatment. This book covers everything-and I
mean everything-that a parent needs to know about the issues
surrounding treatment for childhood leukemia. It amazes me that for
a disease as rare as childhood leukemia, someone as talented a
writer as Nancy took the time to write such a complete and useful
book." Patty Feist, MS Parent a survivor of ALL, Webmaster,
Pediatric Oncology Resource Center "Childhood Leukemia was and is
an invaluable resource for me. I discovered it a few months into my
daughter's leukemia journey and have read and reread it. When Katie
was first diagnosed I was told mountains of information, but was
unable to absorb much of it due to the initial shock of having a
child with cancer. Having all that information and much more at my
fingertips has been a huge help. Sometimes it helped me just to
know what questions to ask. Even now, months after treatment has
ended, I continue to refer to the book for information about the
different drugs that were used; I also use the book to help other
parents who have questions." Pat Lee Mother of a leukemia survivor
"Nancy Keene, whose daughter survived childhood leukemia, offers
help and support in this comprehensive guide for families, friends,
and health care providers of childhood leukemia patients. Leukemia
Society staff and volunteers regularly use this guide as a valuable
reference tool. 'This is an excellent guide for living and coping
with childhood leukemia, ' says Hildy Dillon, Director of the
Information Resource Center at the Leukemia Society of America."
NewsLine Leukemia and Lymphoma Society "This is the definitive book
for lay people, parents of children with cancer, and survivors of
childhood cancer themselves. We routinely provide a copy to all of
our patients and families who are enrolled in our long-term
survivor follow-up clinic for their education. It's a treasure
chest of information." Sharon B. Murphy, MD Chief, Division of
Hematology/Oncology Children's Memorial Hospital Chicago, IL "I am
the great grandmother to a little four-year-old girl who has the
type of leukemia known as ALL I am 90 years old and was a
bookseller for 25 years Your book is so complete and so helpful in
every way, that I couldn't resist sending you my compliments for
writing it. Bless you." Alice H. Sobey (one of dozens of thank-you
letters sent to the author)"
"Of all the many kinds of help we had (and we had lots) Childhood
Leukemia was the single best gift we received. It was the gift of
knowledge, so we could ask intelligent questions about our
daughter's care. It was the gift of security, allowing us to
foresee much of what was coming, and giving us the tools we needed
to cope. And it was the gift of hope, for we could see that many
children do, indeed, get through this trying time, and come through
the grueling treatment intact." --Kim Warren, parent of a child
with leukemia (one of dozens of thank-you letters sent to the
author)
"Our 7-year-old daughter was diagnosed with ALL. We were
immediately given a copy of your book by the hospital. Initially,
we were reluctant to open it and face the information inside.
However, once we decided to pull our heads from the sand, we have
found Childhood Leukemia to be our absolute bible. Not only do we
use it for general information, but we rely heavily on this book
for reassurance in times of crisis (real or potential). I cannot
imagine not having the information so close at hand and so well
organized." --Jocelyn Hillman Mother of a leukemia survivor Board
Member, Alex's Lemonade Stand Foundation
"Keene has written a comprehensive handbook to serve as a road map
for others, from diagnosis through treatment." --Library Journal,
*starred* review and chosen for the prestigious Nursing Your
Children's Health Collection
"What's compelling about Childhood Leukemia: A Guide for Families,
Friends, and Caregivers is the amount of useful medical information
and practical advice it contains.... As the mother of a two-time
survivor of ALL-yes it can recur, in my daughter's case after a
14-year remission-I can vouch that the road to cure is bumpy,
filled with life-threatening complications and requiring aggressive
in-hospital care. Keene spells it all out.... A valuable resource
to help parents and children regain their equilibrium after
diagnosis and during the two to three years of treatment."
--Patricia Dane Rogers, The Washington Post
"Childhood Leukemia is the very best book on the subject that I
have read, and I've read everything I could put my hands on. It is
absolutely correct in the subject matter it covers and the
approach. I wish someone had put a copy in my hands the day after
the diagnosis. It literally will be a life-saving book." --Rebecca
Laird, parent (one of dozens of thank-you letters sent to the
author)
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