Honna Janes-Hodder's youngest son Matthew was diagnosed with neuroblastoma on his third birthday, and passed away at age seven on September 3, 1997. She loved, cared for, and advocated for Matthew during his long struggle with cancer. She lives with her husband, 14-year-old son, and 11-year-old daughter in beautiful Paradise, Newfoundland, and Labrador, Canada. Honna is founder of ChildCan, The Childhood Cancer Research Association of Newfoundland and Labrador, Inc., and president of the International Pediatric Cancer Alliance, Inc. Honna manages most of the pediatric discussion groups for ACOR, the Association of Cancer Online Resources, Inc. ACOR, based in New York, provides accurate and timely medical support and information for all those affected by cancer, in both the pediatric and adult communities. She is the administrator of five online discussion groups, providing support and reliable information to families dealing with childhood cancers globally. In addition, Honna sits on the Public Issues Committee for the Newfoundland and Labrador division of the Canadian Cancer Society and writes a regular health section for a national newspaper in Canada. Honna spends a great deal of time advocating on behalf of children diagnosed with cancer. She does not view this as a job, but as an important part of her identity. Honna attends Memorial University of Newfoundland as a part-time student when time permits, working toward a Ph.D. in biochemistry. Honna and Nancy were two of the first five people appointed as patient advocates to the Children's Cancer Group (CCG), a research organization consisting of pediatric cancer specialists from Canada, the United States, and Australia. They attend CCG meetings and facilitate communication between CCG investigators and the patient community.
Nancy Keene has written or co-authored five health books for families. She is co-creator of the Patient-Centered Guides series and Editor of pediatric titles. Nancy is a tireless advocate for childrens health issues, including pediatric clinical trials, childhood cancer, late effects of childhood cancer treatments, pediatric pain relief, and emotional support for families. She frequently speaks for professional and parent groups and works on/with national pediatric advocacy organizations and committees.
Each year, 11,000 children and adolescents in this country are diagnosed with cancer. Although numerous medical textbooks have been written on this subject, not many are aimed at parents and families. The authors, both mothers of children who had cancer and patient advocates in the Children's Oncology Group (Keene is also the author of Childhood Leukemia), fill in the gap with this guide to six solid-tumor childhood cancers: neuroblastoma, Wilms' tumor, liver tumors, soft tissue sarcomas, retinoblastoma, and bone sarcomas. The description for each tumor covers tumor origins, diagnosis, treatment, and prognosis. There are also chapters explaining clinical trials, surgery, radiation therapy, and chemotherapy in general. Emotional and psychological issues are addressed as well, with personal accounts to help parents and families cope with daily stress or in the event of death. This practical guide will empower parents to understand the disease better and participate more actively in the treatment process. Recommended for all consumer health collections.ÄLily Liu, Arkansas Children's Hosp. Medical Lib., Little Rock Copyright 1999 Cahners Business Information.
|
Ask a Question About this Product More... |
|
